Hypophosphatasia (HPP) is a genetic, multisystem condition that impairs the body’s ability to properly mineralise bones and teeth. Through the lens of HPP, this report illustrates how Australia’s healthcare system remains unfit for people with rare diseases. It presents a clear case for targeted, achievable reforms to improve diagnosis, treatment access and care coordination for...

There is an urgent need for brain cancer care coordinators (BCCCs) throughout Australia, who improve outcomes for patients, carers and families, and the health system. This report discuss the gaps in cancer care navigation faced by patients, families and carers in Australia, and how BCCCs can fill these gaps. It identifies five key steps for...