Report
Promoting lived experience leadership and engagement in mental health and wellbeing research and dissemination
A scoping review
Rowena Jonas, Anita Conlon, Jamie-Lee Lalic
Publisher
Research
Research engagement
Lived experience
Mental health
First Peoples mental health
Wellbeing
Australia
Description
This report examines how the Victorian Collaborative Centre for Mental Health and Wellbeing can support people with lived experience to lead, create and share research. It reviews barriers and enabling factors for lived experience leadership and engagement in research processes. The report concludes with 6 recommendations to strengthen participation and impact.
Recommendations
- Organisations are underpinned by the principle ‘Nothing about us, without us’ – leading with lived experience.
- Organisations create opportunities for people with lived experience, researchers and mental health services to work together to create effective knowledge translation.
- Create opportunities for people with lived experience to be contributors and leaders at every stage of the research lifecycle.
- Bring together people with lived experience and key stakeholders to improve the outcomes that matter most to consumers, carers, family and supporters.
- Action to support First Nations people and communities.
- Evaluate the impact of organisations that support lived experience leadership and involvement in research and dissemination.
Publication Details
Copyright:
The authors 2025
Access Rights Type:
open
Post date:
18 Dec 2025